Alzheimer’s and Transactive Memory

According to the authors of The Myth of Alzheimer’s,technology and social interaction play an important role in mitigating its risk.1 Readers of the Healthymemory Blog should know that transactive memory includes the information stored in technological devices and in our fellow human beings. Hence transactive memory plays an important role in reducing the risk of Alzheimer’s. Technology ranges from the simple book to the vast area of cyberspace. Dr. Whitehouse jokingly refers to the book as a multi-neurotransmitter lexical enhancement device. Both giving and receiving information from our fellow human beings is a healthy means of social interaction.

The remainder of this blog post lists online resources provided in The Myth of Alzheimer’s.

www.eldercare.gov provides information on community organizations offering programs that stimulate, thought, discussion, and personal connections.

www.themythofalzheimers.com is an online community that shares stories of dementia. The hope is that it will foster acknowledgment of the complexity and multiplicity of the many narratives of dementia and the stories of individual lives which make them up and that this will diminish the tyranny of dementia.

www.storycoprs.net records the life histories of elders and stores them in the Library of Congress.

www.duplexplanet.com is a site designed to portray the stories of elders who are in decline.

www.memorybridge.com is the site of an organization with a mission to foster intergenerational communication and facilitate relationships between younger persons and people with dementia

www.storycenter.org is the website of a nonprofit organization that assists young people and older adults in using tools of digital media to craft, record, share, and value stories of individuals and communities in ways that improve all our lives

www.elderssharethearts.org is a web site that affirms the role of elders as bearers of history and culture by using the power of the arts to transmit stories and life experiences throughout communities

www.alz.org is the website of the Alzheimer’s Association. There is a network of local chapters that provide education and support for people diagnosed with AD, their families, and caregivers. Chapters offer referrals to local resources and services, and sponsor support groups and educational programs. The site also offers online and print publications

http://adcs.ucsd.edu is the website of the Alzheimer’s Disease Cooperative Study (ADCS) which is the result of a cooperative agreement between the National Institute of Aging and the University of California at San Diego to advance the research in the development of drugs to treat AD

www.nia.nih.gov/alzheimers is the website of the Alzheimer’s Disease Education and Referral (ADEAR) Center. It provides information on AD, caregiving, fact sheets and reports on research findings, a database of clinical trials, reading lists, and the Progress Report on Alzheimer’s Disease. It also provides referrals to local AD resources

www.caps4caregivers.org is the website for the Children of Aging Parents, a nonprofit organization that provides information and referrals for nursing homes, retirement communities, elder-law attorneys, adult-day-care centers, and state and county agencies. It also provides fact sheets on various topics, a bi-monthly newsletter, conferences and workshops, support group referrals and a speaker’s bureau

www.caregiver.org is the website for the Family Caregiver Alliance (FCA), a non-profit organizatin that offers support services for those caring for adults with AD, stroke, traumatic brain injuries, and other cognitive disorders. They also publish and Information Clearninghouse for FCA publications

www.nhpco.org is the website for the National Hospice and Palliative Care Organization (NHPCO), a nonprofit organization working to enhance the quality of life for individuals who are terminally ill and advocating for people in the final stage of life. They provide information and referral to local hospice services. The provide information on many topics including how to evaluate hospice services

www.nia.nih.gov is the website for the governments lead agency for research on AD. It offers information on health and aging, including an Age Page series, and the NIA Exercise Kit, which countains and eighty page exercise guide

www.nlm.nih.gov is the website for the National Library of Medicine, the world’s largest medicl library with six million items (and growing), including books, journals, technical reports, manuscripts, microfilms, photographs, and images. A large searchable health informationo database of biomedical journals called MEDLINE/PubMed is accessible via the internet. A service called MEDLINEplus links the public to general information about AD and caregiving, plus many other sources of consumer health information. A searchable clinical trials database is located at

http://clinicaltrials.gov

www.wellspouse.org is the website of the Well Spouse Foundation, a nonprofit organizatin providing support to spouses and partners of the chronically ill and/or disabled. It maintains support groups, publishes a bimonthly newsletter, and helps organize letter writing program to help members deal with the effects of isolation.

1Whitehouse, P.J., & George, D. (2008). The Myth of Alzheimer’s. New York: St. Martin’s Press.

© Douglas Griffith and healthymemory.wordpress.com, 2011. Unauthorized use and/or duplication of this material without express and written permission from this blog’s author and/or owner is strictly prohibited. Excerpts and links may be used, provided that full and clear credit is given to Douglas Griffith and healthymemory.wordpress.com with appropriate and specific direction to the original content.

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